Hello Pan
No problem; it’s good now with forum; difficult to speak in english language!
My family have LF syndrom; one sister, two children, my father, my mother, my 2 grandfather and my 2 grandmother dies with cancer; we don’t now if LF syndrom is coming from my mother or from my father.
Now, I have me to a cancer since 2010 but I’m still alive and I’m fighting!
Two of my child and a child of one of my child presents also the LF syndrom.
LF syndrom was diagnostic 10 years ago in our family.
In France, I never meet a doctor (surgeon?) who knows this syndrom except genetics surgeon! That’s incredible! They all told me that a surgeon can’t knows everything!
So, the prevention is very difficult.
I hope it would be better in a few months; genetics praticiens of Nantes hospital are going to plan IRM for all the body (from head to feet) for the patients with LF with a periodicity of one or two in a year; I think it’s not enough; I prefered one every 3 months!
And what about in UK?
Thierry
