[sunny]

Hi all,
This is Renu Surinder’s wife. It’s very sad to post this that my loving husband passed away last week on Wednesday 28-01-2015 at 1am in Greenwich Palliative Care Hospital. He was admitted to Royal North Shore hospital in Sydney on 14th january with high fever,. breathlessness and infection. Doctors found new mets in lung and lymph nodes. later he transferred to palliative care and after few days he died peacefully on wednesday morning.
I know he always read and posted on this forum. Pan and Paul has been always help him with their wonderful suggestions.
After hearing sad news about Paul he was just thinking and talking about Paul and said that my time is also coming soon now. He left two daughters and me behind. He will be greatly missed by all of us.
Thank you all for your support to us.
Renu Luna.

[sunny]

Hi All,
My condtion is worstening and I am in palliative care.Cancer is growing but pain is controlled with morphine and patches.
I also want to say good bye to all and keep research going so that we can find cure for it.

Surinder

[sunny]

Very sad news.he was a great fighter and great source of inspiration.He will be greatly missed by all over the world.May God rest his Soul in peace.

Surinder

[sunny]

TACE didn’t work as I suspected from last four weeks as they chose wrong medicine. Yesterday my oncologist came with new excuse that high doses of cisplatin is not available in Australia (His last excuse was it’s hard to mix for TACE).God save Australians from these so called specialists as they are protected by special legislation.
Now I am with palliative care team whose focus is to manage pain . Now things will go bad from now on, how fast I don’t know, I want thank everyone for your support and Well Wishes and I hope I will get chance to say final good bye. I also hope that new generation wouldn’t have to die with this horrible disease.
Best wishes,

Surinder

[sunny]

Hi All,
Had TACE on 1st Oct.,with doxorubicin and mitomycin,they ignored my request to add cisplatin.It was very painful procedure as they were ill prepared for pain control as no proper anesthetist was in the team instead they kept pumping fentanyl without much pain relief.Discharged next day but ended up again in hospital for a week due to uncontrolled nose bleed,high temperatures and sweats no infection found so for. Getting weaker every day as pain is constant and having difficulty breathing.
Best Regards,
Surinder

[sunny]

Hi All,
Another setback,as I was diagnosed with mild pneumonia just before procedure.I am on strong antibiotics and painkillers for now.TACE is booked for next week.

Surinder

[sunny]

Hi Pan,
I will discuss this soon with my oncologist as soon as I get chance after procedure.This is my previous oncologist Alex Guminski ,out of the blue told me that I am booked for TACE,I have been asking for this from last 8 months.This latest scan showed that pazopanib wasn’t working and the tumors are so big that they have to embolise them in parts according to my GP.I think I will be in hospital for few days as I am having fever and lots of sweats due to the tumours.I will post an update soon.
Kind Regards,
Surinder

[sunny]

Hi Friends,
I am assuming that my Pre TACE CT scan and blood test are fine to undergo TACE.This was my ninth CT including one PET in less than a year.Meanwhile my health is deteriorating, I am feeling like there is a balloon inflating in my tummy,taking Targin tablets for pain.My Oncologist didn’t ask to stop pazopanib but I did just to be safe.How effective TACE will be in my case remain to be seen.
Best Wishes,
Surinder

[sunny]

This team has also decided that surgery will not be a good idea as it involves significant risk right now and will not cure the cancer.This liver surgeon is also not in favor of chemoembolization and other ablation therapies as he thinks these therapies can make future possibility of surgery very risky.Now stuck with Pazopanib. very sad day.

Surinder

[sunny]

After Monday’s meeting with his team and my oncologist.I am seeing him on Wednesday and hopefully he will have plan by then.
Surinder

[sunny]

Hi Pan,thank you for your reply.Everything including mindfulness was working as long as treatment was working.It’s impossible for me take my mind off cancer no matter how hard I try and more hard to believe that doctors are running out of options in 2014
Today I was happy as I saw another liver surgeon who believe that he can take out 90 percent visible cancer safely but he will try for 100 percent.If his team says yes I will go for this risky surgery whatever be the outcome.
Best Regards,
Surinder

[sunny]

Thanks Paul.I have fentanyl patches but haven’t used them,as the pain is not too severe at this stage.There is more of a mental pain as treatment options are exhausting.Going to see my oncologist soon,I hope he could come up with some sort of plan.
Kind Regards,

Surinder

[sunny]

Hi Pan,
I have requested them that I want try chemoembolisation with cisplatin/docetaxel on my own risk and I am ready to sign any paperwork in case anything goes wrong.No answer about that so for. I am feeling continuous pain on right side of my tummy,saw GP and he says tumor might be causing it indirectly.Stopped Pazopanib for about a week but mouth sores are not getting better.
Look like hope is fading away.Never valued my life when I was young that much but when I look at my kids I feel that I need to be around no matter what.
Doctors are always surprised when they see me.I don’t know what to make of it when they say you look so well.
Surinder

Attachments:

• chemosarcoma.jpg

[sunny]

Hi All,
Started Pazopanib 400mg on 13th this month,worst side effect is mouth sores and it’s getting worst despite doing lots of mouth washes.
Its unfortunate that ethics committee is not approving me to enroll in a trial for Intra-Arterial Liver Isolation Chemotherapy Using an Implantable Vascular Access System because of my cancer type.They are enrolling patients with adenocarcinoma with liver metastases and HCC (heptocellular carcinomas) only.

Best wishes,
Surinder

[sunny]

Hi Paul,
Thank you very much for your reply.It is so challenging to get good advise here in Australia.Now my previous oncologist is suggesting to give high dose of chemo directly to the liver with advanced vascular access system which will cause almost no side effect.
I don’t know what to do at this stage.I know Pazopanib not always work for every one but it has rare but risk of liver failure associated with it.If I remember it did not work for you either.At the moment I was advised 400mg a day dosage .I am more interested to see other doctor who might accept me as patient and do some chemoembolisation.
Surinder

[Author]

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