[ELLY]

hi my son leo has 6 month check ups at watford genral and iam under three different hospitals i have breast check ups every year i have a whole bodt mri scan and a skin specialist check me over every year and i go to the royal orthopedic hospital x

[ELLY]

hi helen, I had breast cancer in 2006 aged 24 after having my son. I suffer with LFS . I had both breasts removed and reconstruction, then in 2011 I had a spindle cell sarcoma on my left shoulder. I then had it removed. My grandmother died of breast cancer aged 37, my dad died of lung cancer aged 37, my sister had a Rhabdomysarcoma in her arm when she was about 7, then she had to have it amputated when she was about 9, but then she got blood cancer after having chemotherapy and radiotherapy. She had a bone marrow transplant from my brother, but her lungs went into shock and she sadley passed away aged 19. My brother died of a brain tumour aged 24 in 2010, it all happened so fast. I recently found out my 6 year old son has inherited the LSF. It seems as though we are in a nightmare that won’t end. Sorry to hear your story I wish everything works out for your family big hugs xx

[ELLY]

we have now found out my son has lfs he is only 6 but thankgoodness he is well

[ELLY]

i mean my dads sister sorry

[ELLY]

my mum but she is clear its from my dads side my sister is 66 and has not had the test and her children have not been tested

[ELLY]

hi my name is elly sorry to hear about you and your son i have li fraumani syndrome i found out in 2006 after getting breast cancer at 24 after having my son i had both breasts removed and reconstrution in 2011 i had a spindal cellcarcoma in my left shoulder that was removed my grandmother passed away of breast cancer at aged 37 my father passed away of lung cancer at aged 37 my sister got a rhabdomyosarcoma at the age of 7 had the lump removed in her arm but it just came back so had her arm removed and chemo and radiotherapy then when she was 19 years old she got leukaemia she had chemo but saddly passed away then my brother got a brain tumour in 2010 and passed away before treatment and me and my partner have just found out our son has got li fraumani sydrome i have another sister who is 32 she does not hve the gene its nice to know iam not alone when

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