I am new to this site and not exactly sure how it works or where to start so I decided I’d just share my story here and hopefully this will lead to finding support and/or being support to someone else.
I tested positive for Li-Fraumeni syndrome nearly 1 year ago at the age of 30. I had a prophylactic mastectomy immediately after learning of my diagnosis because my mother died at the age of 39 after a 7 year battle with breast cancer. I felt confident in this decision because I believe it wasn’t “if” I would get breast cancer, it was “when”. It was inevitably in my future. In the midst of preparing for the mastectomy I learned that I had a level 3 melanoma in my right leg. That was scary. I am very fortunate that both surgeries went well and that they were caught early. But now, after the dust has settled, I find myself sinking into a depression and a nasty roller coaster of emotions. I am also plagued by the realization that i may have passed this mutation onto my two young children. I plan to have them tested soon, but that in itself is emotionally challenging. I think that I could really use some support through connecting with others who are facing the same reality.