Home Forums Introductions The wonderful SIGNIFY

This topic contains 4 replies, has 4 voices, and was last updated by  Pan 5 years, 7 months ago.

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  • Author
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  • #386

    Krysha
    Participant

    .

    #387

    PaulW
    Participant

    Hi Krysha,

    I’m sorry to hear about your cancers but I agree it’s very good news that you have found these early through SIGNIFY. It’s great that this trial is taking place. Together with the work that people like Pan are doing in creating this forum and in researching the condition there is reason to hope that the management of LFS will improve in the future.

    I wish you all the best for your forthcoming surgery and for a speedy and complete recovery.

    Paul.

    #393

    Pan
    Keymaster

    Best of luck! And what a great testament to the value of SIGNIFY! Here’s to it becoming standard practice for all LFS patients worldwide – children as well as adults!

    Pan

    #394

    SKH
    Participant

    Can SIGNIFY be for children as well as adults?

    #396

    Pan
    Keymaster

    Unfortunately kids are not included. However, there are some parents who’ve managed to get their kids a similar level of screening but it’s down to the individual genetics clinic rather than being part of the trial.

    The big hope is that we can get this for all children and adults in the future.

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