My story

[sunny]

Hi Friends,
I am assuming that my Pre TACE CT scan and blood test are fine to undergo TACE.This was my ninth CT including one PET in less than a year.Meanwhile my health is deteriorating, I am feeling like there is a balloon inflating in my tummy,taking Targin tablets for pain.My Oncologist didn’t ask to stop pazopanib but I did just to be safe.How effective TACE will be in my case remain to be seen.
Best Wishes,
Surinder

[PanP]

Hi Surinder. Best of luck with TACE. As an alternative to pazopanib have you looked at a metronomic chemotherapy protocol?

[sunny]

Hi Pan,
I will discuss this soon with my oncologist as soon as I get chance after procedure.This is my previous oncologist Alex Guminski ,out of the blue told me that I am booked for TACE,I have been asking for this from last 8 months.This latest scan showed that pazopanib wasn’t working and the tumors are so big that they have to embolise them in parts according to my GP.I think I will be in hospital for few days as I am having fever and lots of sweats due to the tumours.I will post an update soon.
Kind Regards,
Surinder

[SKH]

Hi Surinder
I just wanted to say I am thinking of you. I read all your posts but I can’t add anything that would be helpful. So, just to say we are here.
SKH

[sunny]

Hi All,
Another setback,as I was diagnosed with mild pneumonia just before procedure.I am on strong antibiotics and painkillers for now.TACE is booked for next week.

Surinder

[SKH]

Crossing fingers the anti biotics kick in and knock the pneumonia on the head Surinder.
SKH

[sunny]

Hi All,
Had TACE on 1st Oct.,with doxorubicin and mitomycin,they ignored my request to add cisplatin.It was very painful procedure as they were ill prepared for pain control as no proper anesthetist was in the team instead they kept pumping fentanyl without much pain relief.Discharged next day but ended up again in hospital for a week due to uncontrolled nose bleed,high temperatures and sweats no infection found so for. Getting weaker every day as pain is constant and having difficulty breathing.
Best Regards,
Surinder

[PaulW]

Hi Surinder,

I’m sorry to hear that you are feeling unwell and suffering from a lot of pain. Let’s hope the TACE was successful and your tumours shrink, hopefully resulting in you feeling better.

Best wishes,
Paul

[sunny]

TACE didn’t work as I suspected from last four weeks as they chose wrong medicine. Yesterday my oncologist came with new excuse that high doses of cisplatin is not available in Australia (His last excuse was it’s hard to mix for TACE).God save Australians from these so called specialists as they are protected by special legislation.
Now I am with palliative care team whose focus is to manage pain . Now things will go bad from now on, how fast I don’t know, I want thank everyone for your support and Well Wishes and I hope I will get chance to say final good bye. I also hope that new generation wouldn’t have to die with this horrible disease.
Best wishes,

Surinder

[PanP]

Surinder, I hope the palliative care team are more amenable to the suggestions I made in my email…

Pan

[SKH]

I will keep looking out for your posts Surinder and thinking of you. I share your feelings about future generations. SKH

[sunny]

Hi all,
This is Renu Surinder’s wife. It’s very sad to post this that my loving husband passed away last week on Wednesday 28-01-2015 at 1am in Greenwich Palliative Care Hospital. He was admitted to Royal North Shore hospital in Sydney on 14th january with high fever,. breathlessness and infection. Doctors found new mets in lung and lymph nodes. later he transferred to palliative care and after few days he died peacefully on wednesday morning.
I know he always read and posted on this forum. Pan and Paul has been always help him with their wonderful suggestions.
After hearing sad news about Paul he was just thinking and talking about Paul and said that my time is also coming soon now. He left two daughters and me behind. He will be greatly missed by all of us.
Thank you all for your support to us.
Renu Luna.

[PanP]

Hello Rena. I am so sorry to hear of your loss – I wish you and your daughters the very best. I know how difficult it is to lose loved ones – but please know that you will always have friends here.

Pan

[SKH]

Dear Renu
I am really sorry to hear this news. I would like to echo Pan’s comments and say that we are here for you.
My very best wishes for you and your daughters.
SKH

[Karen]

Hi Renu, so sorry to hear the sad news about Sunny. I know Paul often chatted to him on the forum and they discussed various options. I send you and your family my best wishes during this difficult time.

Karen xx (Paul’s sister)

[Author]

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