George Pantziarka TP53 Trust – Newsletter A Marathon Effort We start this quarter’s newsletter with a huge thank you to Claire Raftery, who has raised an incredible £2,435 for the Trust. Claire ran the Edinburgh Marathon on 25 May, for … Read More
George Pantziarka TP53 Trust – Newsletter Whole-body MRI The only way to describe current access to whole-body MRI for people with LFS in the UK is scandalous. That could finally now be changing.. Right now it remains a post code … Read More
George Pantziarka TP53 Trust – Newsletter Germline p53 isoforms – causing familial cancer? Back in 2017 we funded our first piece of research, in Dr Jean-Christophe Bourdon’s p53 lab at Dundee University. This work evolved to explore the activity of … Read More
The first piece of research that we funded was back in 2017, when we funded work in Dr Jean-Christophe Bourdon’s p53 lab at Dundee University. This work evolved to explore the activity of what are called p53 isoforms (see here … Read More
George Pantziarka TP53 Trust – Newsletter LFS UK 2024 Our eighth annual national conference, was held this year on Saturday September 14th at ISH (International Student House) in central London. Responses so far have been really positive, and we are … Read More
The MILI trial is designed to test whether metformin, a drug that treats type II diabetes, can reduce the risk of cancer in people with Li Fraumeni Syndrome (LFS). The truth is that we don’t know if it will or … Read More
Newsletter #6 George Pantziarka TP53 Trust – Newsletter A muddy day out We begin this quarter’s newsletter with a big thank you to Katie Cole-Fallon who, along with her team, have raised £347 for charity. The group spent a sunny … Read More
A lack of access to the recommended screening, particularly annual whole-body (WBMRI) and brain MRI, is the number one issue facing the LFS community in the UK. Currently provision is a hit and miss affair that depends on where you … Read More
George Pantziarka TP53 Trust – Newsletter LFS Awareness Day The George Pantziarka TP53 Trust was once again happy to mark LFS Awareness Day by wearing blue on March 20th. Take a look at Trust Ambassador Patricia Walsh’s outfit this year … Read More
We do not know how many people with Li Fraumeni Syndrome (LFS) there are in the UK. However, as of July 25th 2023, we do know that there are 9,030 people in the UK with Lynch Syndrome, another cancer predisposition … Read More