LFS Surveillance Protocol – Write to Your MP

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The national LFS surveillance protocol, agreed in July 2018, has still not been rolled out nationally across the NHS. Discussions on funding are taking longer than expected, and as reported by Dr Helen Hanson at our LFS UK 2019 meeting, … Read More

Whole-body MRI – Guest post by Dr Andrew Gogbashian

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A recent study in JAMA Oncology has highlighted the benefits of screening patients with Li-Fraumeni syndrome using whole-body MRI imaging. The study demonstrates that screening with whole-body MRI enables clinically useful early detection of cancer in TP53 mutation carriers. The … Read More

LFS Research Project – Reducing cancer risk

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The previous article outlined how p53 isoforms are changing our view on how TP53 is involved in so many different functions in the cell. Where we used to think there was only one p53 protein doing everything, we now know … Read More

LFS Research Project – p53 isoforms

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The scientific understanding of TP53 continues to evolve and change – while it’s still known primarily because of its function in tumour suppression, we also know that it is central to how cells respond to an increasingly wide range of … Read More

How many people are there with LFS?

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A question that crops up again and again is how many people with Li Fraumeni Syndrome (LFS) are there in the UK? While it’s an easy question to ask, it’s not so easy to find an answer. The fact is … Read More

Give as you shop…

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As part of our fund-raising strategy we’ve recently signed up to a service called Give As You Live. It’s a simple idea – basically it’s a web site which you use to access your favourite online shopping sites. Each time … Read More

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